Posts Tagged ‘Norman Doidge’

23:40  28 July 2020 California

14:58  31 July 2020 California

Studying the performance by actress Marsha Mason (portraying Maggie Paul) in the movie CINDERELLA LIBERTY  (screenplay by Darryl Ponicsan) led me to watching (again) the movie THE GOODBYE GIRL (written by Neil Simon) where Ms. Mason portrays Paula McFadden.

By the way – the term “Cinderella Liberty” is used in the Navy -  a pass that expires at midnight.

In the movie The Goodbye GirlRichard Dreyfuss portrays Elliot Garfield (Mr. Dreyfuss’s performance brought him the Best Actor Oscar award.  https://www.youtube.com/watch?v=-whraNgiWH0 )

In the movie version of the play LOST IN YONKERS (written by Neil Simon), Mr. Dreyfuss portrays Louie Kurnitz (Uncle Louie the gangster).

One video leads to another to another ….

Mindscape: Oscar-winning Actor Richard Dreyfuss on Living with Bipolar Disorder https://www.youtube.com/watch?v=AsE6c4XkiAc

The Menninger Clinic Chief of Staff John M. Oldham, MD, MS interviews actor Richard Dreyfuss who talks about his experience living with a diagnosis of bipolar disorder also known as manic depressive disorder.

Mr. Dreyfuss said:

“I started calling myself manic-depressive when I was 14.”

“… when people say ‘I looked up at the stars, I realized how small I was.’  Well, when I looked up at the stars, I knew how big I was.”

 

Dr. Oldham asked Mr. Dreyfuss about stigmas.

Mr. Dreyfuss said:

“I did not fall into the trap of hating myself.”

“One of the reasons I said that my manic-depression worked for me was that I was able to turn every bad thing into a good thing … when I was not a good academic student, I became the best glib talker in class. They couldn’t fail me because I was too vivid….”

“Right protocol of medication. I am Richard inclusive of my drugs.”

“The darkness of depression”

Mr. Dreyfuss didn’t use one-word adjectives; he told us stories (his experiences), he painted pictures for us.

Thank you, Mr. Dreyfuss! You have helped me gain understanding of how my mother suffered, also how she thrived, living with mental illness.

 

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Stamp Out Stigma is a consumer driven advocacy and educational outreach program designed to make positive changes in the public perception of mental illness and inform the community about the personal, social, economic and political challenges faced by people living with mental illness. Founded by Carmen Lee. Ms. Lee has moved to eastern USA. Ms. Lee, wherever you go, you educate, inspire, and empower us. Thank you!

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To: Mr. Sam Huss, Community Outreach Specialist at RehabSpot.com

Thank you for your email of July 30, 2020 asking me to include your page  “Determining If You Need Rehab or Detox” https://www.rehabspot.com/treatment/before-begins/determining-need-rehab/

Could you add a tab /a page on your website to show RehabSpot’s mission statement, who are the folks at your organization, and where headquarters is?  Thank you!
https://www.michaeljfox.org/ is an excellent website to model after.

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Mr. Michael J. Fox on living with Parkinson’s says: “To me, hope is informed optimism”

 

BOOKS:

The Brain’s Way of Healing: Stories of Remarkable Recoveries and Discoveries by Norman Doidge, M.D.


The Brain That Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science by Norman Doidge, M.D.

 

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http://californiaclubhouse.org/

California Clubhouse… Working to bring Clubhouse to San Mateo County in 2014  
     Our mission The mission of California Clubhouse is to give those whose lives have been disrupted by mental illness the opportunity to recover meaningful work and relationships as they reintegrate into the broader community.

Thank you, Diane W., for telling me about California Clubhouse’s  immediate goal to raise $350,000 to finance the 2014 launch.  June 2016 now – California Clubhouse’s home is in San Carlos!

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https://nami.org/

National Alliance on Mental Illness

From its inception in 1979, NAMI has been dedicated to improving the lives of individuals and families affected by mental illness.

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https://bringchange2mind.org/

 1 in 6 adults and almost 1 in 10 children suffer from a diagnosable mental illness. Yet, for many, the stigma associated with the illness, can be as great a challenge as the disease itself. This is where the misconceptions stop. This is where bias comes to an end. This is where we change lives. Because this is where we Bring Change 2 Mind.

BringChange2Mind.org is a not-for-profit organization created by Glenn Close, the Child and Adolescent Bipolar Foundation (CABF), Fountain House, and Garen and Shari Staglin of IMHRO (International Mental Health Research Organization).

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How the movie The Goodbye Girl and the movie Lost In Yonkers led to Dr. John M. Oldham’s interviewing Oscar-winner Actor Richard Dreyfuss Living with Bipolar Disorder, Manic Depression… led to my gaining a better understanding of how my mother suffered and also thrived living with mental illness.

 

I wish you and everyone around you safety, kindness, excellent health, clear water, blue sky, delicious eats, and sweet laughter!

Sincerely,

author Teresa Jade LeYung, mask by Emily O, July 2020 COVID-19 pandemic

 

 

 

 

 

 

 

 

 

Author and Theme Consultant Teresa Jade LeYung

To help prevent spread of COVID-19, I wear face-covering AND keep at least 6-foot distance with people who don’t live with me.  No blaming No shaming; I protect myself and everyone else.”


Please share - panel of experts and helpful Q&A at State Senator Nancy Skinner’s July 24, 2020 virtual Town Hall on the senator’s Home Page https://sd09.senate.ca.gov/
California Governor Gavin Newsom’s site – dedicated to help us stay informed
How to Protect Yourself & Others (this page offers information in 5 languages)
https://www.cdc.gov/coronavirus/2019-ncov/prevent-getting-sick/prevention.html

How COVID-19 Spreads
(this page offers information in 5 languages)
https://www.cdc.gov/coronavirus/2019-ncov/prevent-getting-sick/how-covid-spreads.html


Teresa Jade LeYung, American naturalized citizen of Chinese ancestry, is a manuscript-theme consultant, author of Love Made Of Heart (archived at the San Francisco History Center), Build Your Writer’s Platform & Fanbase In 22 Days, and Talking To My Dead Mom monologues, and, advocate for public libraries and public schools. Teresa speaks out and offers resources through her Blog: http://lovemadeofheart.com/blog/

 


 

 

 

 

 

 

 

August 7, 2018

Dear Readers,

I (Teresa Jade LeYung) write to you not as a novelist, theme consultant or found-object artist but as a memoirist, daughter of Mr. Leung, and a witness to joy and despair and a whole lot of kindness.

Papa was doing fine, as fine as a 84-year-old fellow with Parkinson’s Disease (and Diabetes and hypertension) could do. Just four months ago, he was using his walker several times a day … to go from his apartment to the balcony on his floor and to the courtyard in the senior building he lived in.  To show off in the hallway, whenever a caregiver was nearby (and I have photos to prove this), he would abandon the walker and use the handrail to traverse the seventeen feet to the door of his apartment.

On July 19, around 5:00pm while I was away on a writing retreat with two dear friends/colleagues, my sister (who was here for the summer) called me to say that paramedics were taking our father to an E.R.

A few days prior to this one, his caregivers had been reporting (in Cantonese) that our papa  was “looking sad”.  That morning of July 19, caregiver Mrs. G. had reported to my sister that Papa was feeling dizzy.  When my sister called me, my advice to her was to ask questions: “Had Papa eaten breakfast?  Had he been drinking water everyday? What was he doing before feeling dizzy?” He would be seeing his primary care physician that afternoon at 4:00pm … Well, our papa was in no condition to go to the appointment.  His primary care physician instructed my sister to call 9-1-1.

In E.R. and the hospital, our papa was being treated for pneumonia and urinary tract infection.

Pneumonia. When two friends heard the word “pneumonia” they gently prepared me for the worst case scenario. Well, Papa has beat the odds before.

He had aspiration pneumonia (probably caused by food or water going down the windpipe which led to bacteria infection).

And, he was fighting a urinary tract infection.

July 22 (the day that my sister flies home), Papa is transferred to a skilled nursing facility.  He had bounced back before, twice last year – dehydration and falls.  This time is different.

My papa is not Mr. John Pepper (the hero in Chapter 2 “The Man Who Walks Off His Parkinsonian Symptoms” in the book The Brain’s Way of Healing by Norman Doidge, M.D.).  Papa is his own hero, winning smile, flaws and all.

Papa Makes Decision “Where Do I Go Now?”  After Hospitalization.  While In Skilled Nursing Rehabilitation.

August 7, I asked the Director of Social Services at the skilled nursing facility where Papa was at…

“Could we please have a meeting, with a Cantonese-speaking interpreter, so that my father can hear in his native language…what his choices are when he is discharged? I want him to make his own decision. He’s been asking me to help him go home. He needs to understand what is happening.”

Miracles involving my father also involves the ticking of a clock.

The meeting would take place that afternoon. I asked dear friend Sasa to go with me (I needed someone to witness my role).  The meeting would take place after Papa has his lunch and before my friend would need to leave at 2pm.

Staff members at this institution are pulled in various directions during a work day. The Director of Social Services was most accommodating.  Sasa and I arrived at 12:30, patients were waiting for lunch which was served later than usual today.  1:00pm  Papa’s puree and “controlled carbs” meal arrived (looks delicious, really).

At 1:40pm all the characters for the scene were in place – Papa; director of social services; interpreter who is also activities director; my friend Sasa; Papa’s caregiver Mrs. G who was visiting; and me.

What are the 3 options when skilled nursing facility discharges Papa?

  • Go home? He was receiving 5 hours/day of care through IHSS. He now needs 24-hour care.  Who will pay for the 19 hours each day? His monthly income from Social Security is approximately $1,000; $300 of that goes to paying rent of a studio apartment in a senior housing; the balance pays for food, hygiene products, telephone, TV, SF Paratransit. My sister and I can contribute up to $700/month. Care-giving costs $35-$40/hour; most agencies want a 4-hour minimum each day; our $700/month would buy approximately 18 hours.
  • **
  • Accept a Medi-Cal bed in a nursing home for long-term care. (If Papa were to private pay, the cost of nursing home care would be more than $300/day.)  Because he has Medi-Cal (thank God), he would authorize Social Security to transfer his monthly income to the nursing home. http://www.canhr.org/factsheets/medi-cal_fs/html/fs_medcal_overview.htm Medi-Cal is a combined federal and California State program designed to help pay for medical care for public assistance recipients and other low-income persons. There are 3 of these beds (vacancies) in the facility right now, on the nursing home floors.
  • **
I watched my papa’s face evaluating the 3 options.  I heard him answer in Cantonese “I want long-term care here.”
My blog post 2 of 3 shall be about what happened that afternoon, what life looks like on the nursing home floor, what to do before the 90-day evaluation.

**

The Michael J. Fox Foundation  www.michaeljfox.org

https://www.michaeljfox.org/foundation/news-detail.php?swallowing-and-parkinson-disease  In addition to the classic motor symptoms of Parkinson’s (tremor, slowness, stiffness, walking and/or balance problems), a person may develop changes in speech and/or swallowing.  Speech and swallowing therapy exercises, combined with Parkinson’s medication adjustment and, if necessary, dietary and/or behavioral modifications are the mainstays of management.

… to improve swallowing and lessen the risk of aspirating. These could include dietary modifications — such as thickening liquids — and/or behavioral strategies, such as avoiding drinking through straws, tucking the chin to the chest when swallowing or taking smaller bites at slower intervals.

To hear a webinar presented by Michael J. Fox Foundation on urinary problems and Parkinson’sclick here or look up any webinar by visiting at www.michaeljfox.org/webinars.

http://canhr.org

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http://canhr.org/factsheets/rcfe_fs/html/rcfe_evalchecklist_fs.htm

Since 1983, California Advocates for Nursing Home Reform (CANHR), a statewide nonprofit 501(c)(3) advocacy organization, has been dedicated to improving the choices, care and quality of life for California’s long term care consumers. Through direct advocacy, community education, legislation and litigation it has been CANHR’s goal to educate and support long term care consumers and advocates regarding the rights and remedies under the law, and to create a united voice for long term care reform and humane alternatives to institutionalization.

**

Sincerely,

Teresa Jade LeYung

http://lovemadeofheart.com/blog/papa-wins-parkinsons-disease-loses-papa-wins/

Coach Teresa LeYung-Ryan loves reading, writing, and looking for themes in clients’ manuscripts.

What have I been reading?

“Traveling in Bardo” by Ann Tashi Slater (also the author of Travels Within and Without, a chapbook of  the author’s Tibet-related fiction and non-fiction, produced for “Dreams, Memories, Journeys: Stories of a Tibetan Family,” her multi-media presentation at The Rubin Museum in NYC on July 6, 2016). What is “bardo”? In Tibetan Buddhism – the journey between death and rebirth.

Slow Medicine: The Way to Healing by Dr. Victoria Sweet (also the author of God’s Hotel: A Doctor, a Hospital, and a Pilgrimage to the Heart of Medicine)

The Man Who Mistook His Wife For A Hat: And Other Clinical Tales by Oliver Sacks (also the author of Musicophilia: Tales of Music and the Brain)

And, the book which I have multiple copies of (to lend to friends) is  The Brain’s Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity by Norman Doidge, M.D. (also the author of The Brain That Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science)

Then there are delicious novels (including sociologist Margaret R. Davis’s The Miranda Affair ) – I shall blog about these novels in another post.

As Platform-Building Coach Teresa LeYung-Ryan, I am helping author / sociologist Margaret R. Davis promote her new novel The Miranda Affair -  How does one find happiness as women and men struggle to climb the corporate ladder?

As Theme Consultant Teresa LeYung-Ryan, I am helping my client (who is a chaplain at a hospice) structure his memoir (theme: letting grief ease). Bravo!

My own work in progress is a memoir related to my “Talking to My Dead Mom” monologue series.

Cheering for all story-tellers, writers and readers!

 

 

 

 

 

 

 

 

 

Theme Consultant/Platform-Building Coach Teresa LeYung-Ryan who teaches my clients (writers and artists) how to reach out, not stress out, before and after publication –

* identify themes in your manuscripts so that you can rewrite with ease;

* identify themes in your intellectual properties and create scripts for your websites/blogs, pitches, query letters, press releases, talking-points, one-minute videos, photo slideshows, and the all-mighty blog posts.

Please visit http://LoveMadeOfHeart.com/blog and http://WritingCoachTeresa.com  for resources.

Coach Teresa’s motto:  “Reach out, not stress out. Help your fans find you BEFORE & AFTER publication”

 

 

 

Dear Writers/Caregivers/Advocates for Loved Ones,

Coach Teresa LeYung-Ryan here . . .  I see how helping a loved one/being an advocate is so much like writing a book.

My papa has been diagnosed with Parkinsonism by his neurologist. If Papa is telling his story, he would be the first-person narrator; if I’m telling the story about him, then I would be the third-person narrator.

A book (story) consists of one main character (also known as “hero” or “protagonist”) or multiple main characters and other characters (other archetypes), a subject matter that is discussed repeatedly (“theme”) and at least one plotline (“what happened?”). The merging of these elements helps the writer show the hero’s journey.

Helping a loved one/being an advocate consists of at least 2 protagonists (YOU and the loved one) and other archetypes (physicians, healthcare and social service providers, other family members and friends, neighbors, coworkers, vendors, . . . the stranger who gives up her/his seat on the train for you), themes (the cause for help and advocacy and the related issues), and plotlines (the interconnected events associated with all the characters).  Who will be the most transformed in the story?  The loved one?  You the caregiver/advocate? The person who is most transformed would be the main character/hero/protagonist.  Perhaps both people will go through great transformation.  Two protagonists!

I am writing – I keep a notebook for whenever I visit my papa or when I do something on his behalf- gosh, there are so many little “subplots” to keep track of! (Is this Papa’s third or last session with the physical therapist? Mary and I need to witness the exercises so that when the P.T. closes the case, we would be able to coach Papa. Did he say he wanted another heating pad? Oh my, there are at least 18 model to choose from.   Gotta review friends’ advice about what is a comfortable bed and also Consumer Reports. Then Papa has to “test drive” some beds. You just can’t shop for a mattress the way you shop for a pair of shoes.

MATTRESS SHOPPING TIPS (from Sealy’s website)

  1. Plan to spend at least one hour in the store.
  2. Wear loose clothing and easily removable shoes.
  3. Test out mattresses in groups of three for easier comparison.
  4. Lie on each mattress for 5 to 15 minutes to let it fully adapt to your body.
  5. Don’t feel rushed. It’s ok to ask for privacy.

I would add:  Bring your own pillow so that your neck is supported while trying out mattresses; maybe bring an extra pillow case too.

And, I am reading the book The Brain’s Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity by Norman Doidge, M.D.  Chapter 2 is titled “A Man Walks Off His Parkinsonian Symptoms”  . . . how John Pepper has been able to reverse the major symptoms, the ones that Parkinson’s patients dread most, those that lead to immobility. He’s done so with an exercise program he devised and with a special kind of concentration . . .

All the “characters” in Dr. Doidge’s books (The Brain’s Way of Healing  and The Brain that Changes Itself: Stories of Personal Triumph from the Frontiers of Brain Science) and in Dr. Victoria Sweet‘s book (God’s Hotel: A Doctor, a Hospital, and a Pilgrimage to the Heart of Medicine) are guiding me on my journey as an advocate for my father.  And, I just know that my mom plays a huge role in helping me.

I thank everyone who has given me her/his time, energy, and prayers.

Here are links to websites I’ve relied on lately:

https://franceskakugawa.wordpress.com/category/caregiving/  Frances Kakugawa

http://www.writeradvice.com/ywmtdw.html  B. Lynn Goodwin

http://www.normandoidge.com/  Norman Doidge, M.D.

https://www.michaeljfox.org/  Michael J. Fox Foundation

Special thanks to Margie Yee Webb, Frances Kakugawa, Penny Manson, Debbie Ramos and her daughter Melanie who went out of their way to help me research specific items and to Mary, my sister Maria Leung, Linda Harris, Sue, Janet, and Elaine for being there in person.

Sincerely,

Writing Coach Teresa LeYung-Ryan

 

 

 

 

 

 

 

 

 

 

 

Author & Fanbase-Building Coach Teresa LeYung-Ryan says: “Reach out, not stress out. Enjoy your writer’s journey.”
http://WritingCoachTeresa.com

http://lovemadeofheart.com/

http://lovemadeofheart.com/blog/

https://www.youtube.com/user/teresaleyung

 

 

 

 

 

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